“Because people can see me”: Appropriation of YouTube for chronic illness management

Nwakego Isika, Antonette Mendoza, R. Bosua

Research output: Chapter in Book/Report/Conference proceedingConference Article in proceedingAcademicpeer-review


With the rapid increase of social media adoption globally, there has been a surge in the number of chronically ill adults who utilize social media tools as part of their illness management practice. While there have been numerous conceptual papers discussing the potential benefits of appropriation in this context, there seem to be limited studies that have explored the appropriation of social media platforms by this cohort. This paper addresses this gap in knowledge through a case study with a mixed method approach to examine the appropriation of YouTube by chronically ill adults to better understand and manage their Fibromyalgia illness. Our results highlight the process of social media appropriation which include: viewing to vlogging; implementing workarounds and; borderless appropriation of social media tools. In addition, self-presentation, building transactive relationships, engagement in illness advocacy and technology features were found to influence appropriation outcomes for chronically ill adults on social media.
Original languageEnglish
Title of host publicationProceedings of the 27th European Conference on Information Systems (ECIS)
Subtitle of host publicationStockholm & Uppsala, Sweden, June 8-14, 2019
Place of PublicationStockholm & Uppsala
PublisherAIS Electronic Library
Number of pages19
ISBN (Print)9781733632508
Publication statusPublished - 15 May 2019
Event27th European Conference on Information Systems - Stockholm University, Stockholm & Uppsala, Sweden
Duration: 8 Jun 201914 Jun 2019
Conference number: 27


Conference27th European Conference on Information Systems
Abbreviated titleECIS 2019
CityStockholm & Uppsala
Internet address


  • Technology Appropriation
  • Social media appropriation
  • Mixed methods analysis
  • Chronic illness


Dive into the research topics of '“Because people can see me”: Appropriation of YouTube for chronic illness management'. Together they form a unique fingerprint.

Cite this