Design and process evaluation of an informative website tailored to breast cancer survivors' and intimate partners' post-treatment care needs

Evelyn Pauwels, Elke Van Hoof, Caroline Charlier, Lilian Lechner, Ilse De Bourdeaudhuij

    Research output: Contribution to journalArticleAcademicpeer-review


    BACKGROUND: On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailored informative website and to assess which characteristics of survivors and partners, participating in the feasibility study, are related to visiting the website.

    METHODS: The development process included quantitative and qualitative assessments of survivors' and partners' care needs and preferences. Participants' use and evaluation of the website were explored by conducting baseline and post-measurements. During the intervening 10-12 weeks 57 survivors and 28 partners were granted access to the website.

    RESULTS: Fifty-seven percent (n=21) of survivors who took part in the post-measurement indicated that they had visited the website. Compared to non-visitors (n=16), they were more likely to have a partner and a higher income, reported higher levels of self-esteem and had completed treatment for a longer period of time. Partners who consulted the on-line information (42%, n=8) were younger and reported lower levels of social support compared to partners who did not visit the website (n=11). Visitors generally evaluated the content and lay-out positively, yet some believed the information was incomplete and impersonal.

    CONCLUSIONS: The website reached only about half of survivors and partners, yet was mostly well-received. Besides other ways of providing information and support, a website containing clear-cut and tailored information could be a useful tool in post-treatment care provision.

    Original languageEnglish
    Article number548
    Number of pages13
    JournalBMC Research Notes
    Publication statusPublished - 3 Oct 2012


    • Breast Neoplasms/rehabilitation
    • Female
    • Health Services Needs and Demand
    • Humans
    • Internet
    • Interpersonal Relations
    • Male
    • Middle Aged
    • Needs Assessment
    • Quality of Life
    • Sexual Partners/psychology
    • Social Support
    • Software Design
    • Surveys and Questionnaires
    • Survivors/psychology
    • Breast cancer
    • Partner
    • Design study
    • Process evaluation
    • Survivorship


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