Abstract: Despite the profound effects of chronic lymphocytic leukemia (CLL) on all aspects of the patient’s life, hardly any studies have been conducted that have objectively assessed the quality of life of these patients. The same is true of the patient’s existential fulfilment in relation to quality of life.The sample consisted of 138 CLL patients who were supporters of the Contact Group Leukemia Foundation. The patients filled out questionnaires assessing quality of life, fatigue and existential fulfilment. Standardized and validated survey instruments were used. The most common physical disorders were increased cholesterol, hypertension, arthritis and cardiovascular complaints. Female patients received less support from their immediate surroundings than male patients. Women experienced more negative emotions than men. Quite a lot of patients had high fatigue scores (66%). Concerning existential fulfilment, there was only a difference in self-transcendence (non-material issues). Women scored higher than men on self-transcendence. Patients older than 65 years scored higher on self-transcendence than patients younger than 65. Regression analysis showed that self-acceptance was related to social/family well-being and functional well-being. Self-actualization was related to social/family well-being and emotional and functional well-being. Self-transcendence was not related to QOL. The sample of CLL patients was limited. We do not know whether the study is representative of all CLL patients in the Netherlands. The study should be repeated on a representative sample of all CLL patients in the Netherlands.
- kwaliteit van leven, existentiele zingeving, chronische lymfatische leukemie