Psychometric properties of the Dutch extended Cancer Survivors' Unmet Needs measure (CaSUN-NL)

M. C. Keeman, C. A. W. Bolman*, I. Mesters, R. A. Willems, I. M. Kanera, L. Lechner

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Information and support needs increase emotional distress and can impede cancer survivors’ adjustment. To investigate the information and support needs of Dutch cancer survivors, the Cancer Survivors’ Unmet Needs measure (CaSUN) was translated into Dutch and applied in two Dutch studies with cancer survivors (N = 255; N = 467). The CaSUN‐NL entailed the original five CaSUN scales, extended with respectively a returning to work and lifestyle scale. This study aimed to determine the psychometric properties of the CaSUN‐NL. To assess validity, a maximum likelihood factor analysis was employed. Construct validity was analysed using Pearson's and Spearman's correlation coefficients. To assess reliability, test–retest (Kappa coefficient) and internal consistency (Cronbach's alpha) values were determined. Factor analysis revealed the original five factors. Test–retest reliability was low (r ≤ .15, 93% retest response). Internal consistency values were high (Cronbach's alpha = 0.92–0.94), except for lifestyle. Significant correlations were found between total number of unmet needs with anxiety (r = .55), depression (r = .49), negative adjustment (r = .50), quality of life (r = −.52) and age (r = −.24). The CaSUN‐NL is valid and reliable to investigate the unmet information and support needs of Dutch cancer survivors.
Original languageEnglish
Article numbere12807
Number of pages8
JournalEuropean Journal of Cancer Care
Volume27
Issue number2
DOIs
Publication statusPublished - Mar 2018

Keywords

  • Adolescent
  • Adult
  • Aged
  • Aged, 80 and over
  • Cancer Survivors/psychology
  • Case-Control Studies
  • Female
  • Humans
  • Male
  • Middle Aged
  • Needs Assessment/standards
  • Neoplasms/psychology
  • Netherlands
  • Psychometrics
  • Quality of Life
  • Randomized Controlled Trials as Topic
  • Surveys and Questionnaires
  • Young Adult
  • reliability
  • ILLNESS
  • PREVALENCE
  • SUPPORTIVE CARE NEEDS
  • PERCEPTION QUESTIONNAIRE
  • unmet needs
  • QUALITY-OF-LIFE
  • HEALTH
  • DIAGNOSIS
  • STYLE
  • INSTRUMENT
  • CaSUN
  • cancer survivors
  • validity
  • OUTCOMES

Cite this

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title = "Psychometric properties of the Dutch extended Cancer Survivors' Unmet Needs measure (CaSUN-NL)",
abstract = "Information and support needs increase emotional distress and can impede cancer survivors’ adjustment. To investigate the information and support needs of Dutch cancer survivors, the Cancer Survivors’ Unmet Needs measure (CaSUN) was translated into Dutch and applied in two Dutch studies with cancer survivors (N = 255; N = 467). The CaSUN‐NL entailed the original five CaSUN scales, extended with respectively a returning to work and lifestyle scale. This study aimed to determine the psychometric properties of the CaSUN‐NL. To assess validity, a maximum likelihood factor analysis was employed. Construct validity was analysed using Pearson's and Spearman's correlation coefficients. To assess reliability, test–retest (Kappa coefficient) and internal consistency (Cronbach's alpha) values were determined. Factor analysis revealed the original five factors. Test–retest reliability was low (r ≤ .15, 93{\%} retest response). Internal consistency values were high (Cronbach's alpha = 0.92–0.94), except for lifestyle. Significant correlations were found between total number of unmet needs with anxiety (r = .55), depression (r = .49), negative adjustment (r = .50), quality of life (r = −.52) and age (r = −.24). The CaSUN‐NL is valid and reliable to investigate the unmet information and support needs of Dutch cancer survivors.",
keywords = "Adolescent, Adult, Aged, Aged, 80 and over, Cancer Survivors/psychology, Case-Control Studies, Female, Humans, Male, Middle Aged, Needs Assessment/standards, Neoplasms/psychology, Netherlands, Psychometrics, Quality of Life, Randomized Controlled Trials as Topic, Surveys and Questionnaires, Young Adult, reliability, ILLNESS, PREVALENCE, SUPPORTIVE CARE NEEDS, PERCEPTION QUESTIONNAIRE, unmet needs, QUALITY-OF-LIFE, HEALTH, DIAGNOSIS, STYLE, INSTRUMENT, CaSUN, cancer survivors, validity, OUTCOMES",
author = "Keeman, {M. C.} and Bolman, {C. A. W.} and I. Mesters and Willems, {R. A.} and Kanera, {I. M.} and L. Lechner",
note = "{\circledC} 2018 The Authors. European Journal of Cancer Care Published by John Wiley & Sons Ltd.",
year = "2018",
month = "3",
doi = "10.1111/ecc.12807",
language = "English",
volume = "27",
journal = "European Journal of Cancer Care",
issn = "0961-5423",
publisher = "WILEY-BLACKWELL",
number = "2",

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Psychometric properties of the Dutch extended Cancer Survivors' Unmet Needs measure (CaSUN-NL). / Keeman, M. C.; Bolman, C. A. W.; Mesters, I.; Willems, R. A.; Kanera, I. M.; Lechner, L.

In: European Journal of Cancer Care, Vol. 27, No. 2, e12807, 03.2018.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Psychometric properties of the Dutch extended Cancer Survivors' Unmet Needs measure (CaSUN-NL)

AU - Keeman, M. C.

AU - Bolman, C. A. W.

AU - Mesters, I.

AU - Willems, R. A.

AU - Kanera, I. M.

AU - Lechner, L.

N1 - © 2018 The Authors. European Journal of Cancer Care Published by John Wiley & Sons Ltd.

PY - 2018/3

Y1 - 2018/3

N2 - Information and support needs increase emotional distress and can impede cancer survivors’ adjustment. To investigate the information and support needs of Dutch cancer survivors, the Cancer Survivors’ Unmet Needs measure (CaSUN) was translated into Dutch and applied in two Dutch studies with cancer survivors (N = 255; N = 467). The CaSUN‐NL entailed the original five CaSUN scales, extended with respectively a returning to work and lifestyle scale. This study aimed to determine the psychometric properties of the CaSUN‐NL. To assess validity, a maximum likelihood factor analysis was employed. Construct validity was analysed using Pearson's and Spearman's correlation coefficients. To assess reliability, test–retest (Kappa coefficient) and internal consistency (Cronbach's alpha) values were determined. Factor analysis revealed the original five factors. Test–retest reliability was low (r ≤ .15, 93% retest response). Internal consistency values were high (Cronbach's alpha = 0.92–0.94), except for lifestyle. Significant correlations were found between total number of unmet needs with anxiety (r = .55), depression (r = .49), negative adjustment (r = .50), quality of life (r = −.52) and age (r = −.24). The CaSUN‐NL is valid and reliable to investigate the unmet information and support needs of Dutch cancer survivors.

AB - Information and support needs increase emotional distress and can impede cancer survivors’ adjustment. To investigate the information and support needs of Dutch cancer survivors, the Cancer Survivors’ Unmet Needs measure (CaSUN) was translated into Dutch and applied in two Dutch studies with cancer survivors (N = 255; N = 467). The CaSUN‐NL entailed the original five CaSUN scales, extended with respectively a returning to work and lifestyle scale. This study aimed to determine the psychometric properties of the CaSUN‐NL. To assess validity, a maximum likelihood factor analysis was employed. Construct validity was analysed using Pearson's and Spearman's correlation coefficients. To assess reliability, test–retest (Kappa coefficient) and internal consistency (Cronbach's alpha) values were determined. Factor analysis revealed the original five factors. Test–retest reliability was low (r ≤ .15, 93% retest response). Internal consistency values were high (Cronbach's alpha = 0.92–0.94), except for lifestyle. Significant correlations were found between total number of unmet needs with anxiety (r = .55), depression (r = .49), negative adjustment (r = .50), quality of life (r = −.52) and age (r = −.24). The CaSUN‐NL is valid and reliable to investigate the unmet information and support needs of Dutch cancer survivors.

KW - Adolescent

KW - Adult

KW - Aged

KW - Aged, 80 and over

KW - Cancer Survivors/psychology

KW - Case-Control Studies

KW - Female

KW - Humans

KW - Male

KW - Middle Aged

KW - Needs Assessment/standards

KW - Neoplasms/psychology

KW - Netherlands

KW - Psychometrics

KW - Quality of Life

KW - Randomized Controlled Trials as Topic

KW - Surveys and Questionnaires

KW - Young Adult

KW - reliability

KW - ILLNESS

KW - PREVALENCE

KW - SUPPORTIVE CARE NEEDS

KW - PERCEPTION QUESTIONNAIRE

KW - unmet needs

KW - QUALITY-OF-LIFE

KW - HEALTH

KW - DIAGNOSIS

KW - STYLE

KW - INSTRUMENT

KW - CaSUN

KW - cancer survivors

KW - validity

KW - OUTCOMES

U2 - 10.1111/ecc.12807

DO - 10.1111/ecc.12807

M3 - Article

VL - 27

JO - European Journal of Cancer Care

JF - European Journal of Cancer Care

SN - 0961-5423

IS - 2

M1 - e12807

ER -